J: This weekend found us on the road again, this time the destination was Nashville. We went to support my son B who organized a team for the Alzheimer's Walk, much as my son J did a couple of weeks ago in Columbus. We attended that walk as well. I was very moved by the effort that my sons put forth to raise money from their friends and co-workers. And touched even more by their willingness to give up a part of their weekend to walk for this cause. So that was the positive part.
The OVERWHELMINGLY negative part of the weekend was (and continues to be) that the reason for these walks gets bigger every day. Every 11 seconds someone is diagnosed with Alzheimer's disease. And everyone diagnosed with the disease will die. With Alzheimers.
And so what do we do about it? We get together at locations around the country and walk. Sure, we carry brightly colored flowers identifying us as caregivers, or those that remain after a loved one has died of the disease. And these flowers attract attention while we walk. But the whole time I'm walking I want to scream THIS IS NOT ENOUGH. This is a charade. This disease is killing millions of people. And we have NO CURE and NO HOPE. And the amount of money dedicated to research in to this disease is ridiculously small compared to the amount devoted to cancer research. And guess what - people who have cancer don't always die from it. They have hope - something that is sorely lacking in our community. Why do I feel like these walks are akin to arranging the deck chairs on the Titanic? C'mon - where is the money? Where is the weight behind our movement? Is it going to take President Trump's wife being diagnosed with the disease for something to change? This is RIDICULOUS.
I have read about Seth Rogen's campaign to stimulate funding for research and I'm encouraged that his loud voice is calling for change. He pulled up a deck chair after his mother in law was diagnosed with early onset at age 55. Who else is out there who can help us? Someone is diagnosed every 11 seconds. The next one to get the awful news could be your mom or dad. You don't want to take a seat on one of those deck chairs. Raise your voice and demand more money for research for a cure.
The time is NOW